Thursday, July 3, 2014

Merrily we roll along...

Walked up my ramp with my walker yesterday evening!  While not completely finished, I can access my house without the split-level stairway.  That is a good thing.

Especially as things are progressing steadily.  Funny, to use the word "progress" when it means such a dreadful thing.  It's even difficult typing with my right hand.  My ring finger is pretty useless, at least for me to confidently type.  No great coordination between the right hand fingers.

Suggested "Until I Say Goodbye" to my book club, and they gamely agreed.  I said it was my role to spread awareness of ALS!  I hope they enjoy it, and it gives them more information about ALS.  It's sad that the author has passed, but I know from FB posts that she lived a life of joy right up to the end.

The 4th of July is tomorrow: lots of plans for the Park, a friend's house, Shakespeare in the Park, and fireworks.  This year I won't go barefoot (and get a burn on my sole)--one benefit of a brace!  I have to wear shoes.

Trying to get into an MDA/ALS clinic in Montana.  Really not sure that I will get a lot out of it, but I do need to be fitted for another or an expanded brace (and one for my left leg, too).  I am not a fan of the medical community.  I haven't had a bad experience; I just don't like committing myself to others' care.  Bad patient!  Good thing I have a disease they can't really treat.  I'd be a very recalcitrant cancer patient.

Hot days in Havre, but the shade is bearable.  It really is a wonderful world.

2 comments:

  1. Maybe we can easily liken this warrior in you as being the contrary on the doubter in you. The actual warrior could head out merrily in combat; this doubter are unable to read more Maybe we can easily liken this warrior in you as being the contrary on the doubter in you. The actual warrior could head out merrily in combat. You can read more: http://mordo-crosswords-solution.blogspot.com/2014/06/merrily-we-roll.html.

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    Sheila

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