Thursday, January 23, 2014

Worth it!

Tried to run to catch the sunset on camera just now.  Running is a funny activity when one leg absolutely rebels.  But this is what I caught, and it was worth finding out yet again that running is not an option for me.


So very worth it!

I am reading a book recommended by Caroline: The Fault in Our Stars by John Green.  I am only half way through, but I can guess I will cry more than the two times I have already.  Tears come for the parents, for the people who have loved ones with fatal diseases.  I am finding it relatively easy to face ALS myself, so far anyway, but hope my attitude can help others accept it, too.

Dang, don't I sound noble?!

If you want more of my incredible nobility (akin to whistling past the graveyard, really), try reading what I wrote for our local paper, the Havre Daily News:

 http://www.havredailynews.com/story/2014/01/20/opinion/als-makes-you-appreicate-what-you-have/201888.html

A lot of people have been very, very kind to me, and while I hope to send thank you notes to all of them, I also want to get higher in Candy Crush.  (Oh my, did I really say that?!)  Too much to do, too little time!  I will get to the notes and away from the addicting games, I promise!


Wednesday, January 15, 2014

New challenges

I'm doing well, and am still enjoying every day, but balance is becoming an issue.  Man, do I hate that!  I always prided myself on my balance (physical, not mental!).  Reiterating an earlier post: pride goeth before a fall.  I've fallen on the ice and fallen while shutting a door -- two days in a row.  Both times in front of people. Dang.  It's very frustrating...I want to just lie there and recoup my equilibrium (the mental kind).

That doesn't make me terribly unhappy, though.  I just have to realize that it's a natural progression of my condition, and adjust my movements accordingly.

Spent time with Dolan's attorney discussing his trial today.  Law is pretty interesting.  When I went to college my intent was to become a lawyer and work in D.C.  That seems a lifetime ago.  Yet as we discuss legal tactics, I am fascinated all over again.

I'm also intrigued by counseling.  Is it too late to start another career?!  That is the one beauty of ALS: eventually all I will do is read and think constantly.  Can you imagine, though, my not being able to talk about what I am learning?!  Here comes electronic voice simulation!