Friday, March 13, 2015
Is this it?
I ask, because I had enough trouble driving today that I felt like driving might be beyond me soon. It's a tired day, so maybe that's influencing how I feel. Still, I don't want to wreck before I turn in my keys. I want to make the decision prior to that.
Wednesday, March 4, 2015
Ponderings
Update on JR14: unanimously passed the full Senate. Now for the House...
A person with ALS has been compared to a candle melting as the flame burns. That seems apt, as the light goes out at the end of a life, just as a candle sputters and dies. I was envisioning myself as a house, brightly lit, with the lights being turned off one by one. One light is walking, another using my hands, or being able to roll over in bed. Lights have gone out in many ways, but just as one can still function in a darkened house, I can still do so many things.
Work brings me joy, but getting there presents challenges. Today I simply do not have the physical or mental energy to pull myself through showering and dressing. Putting on underwear or socks can take 15 minutes for each, plus the time for the remainder of dressing. The idea of that is pretty daunting. I am thankful that I have an understanding supervisor in John.
I have not wanted to let ALS stop me from going to work, because the slope is way too slippery, and if go down it, I most likely will not come back up. I am not ready to call it quits yet!
Each day is joyful, and always will be, because of my family, the Earth, and my friends. Still, I want this blog to speak for me, and help people understand the challenges of dealing with ALS.
A person with ALS has been compared to a candle melting as the flame burns. That seems apt, as the light goes out at the end of a life, just as a candle sputters and dies. I was envisioning myself as a house, brightly lit, with the lights being turned off one by one. One light is walking, another using my hands, or being able to roll over in bed. Lights have gone out in many ways, but just as one can still function in a darkened house, I can still do so many things.
Work brings me joy, but getting there presents challenges. Today I simply do not have the physical or mental energy to pull myself through showering and dressing. Putting on underwear or socks can take 15 minutes for each, plus the time for the remainder of dressing. The idea of that is pretty daunting. I am thankful that I have an understanding supervisor in John.
I have not wanted to let ALS stop me from going to work, because the slope is way too slippery, and if go down it, I most likely will not come back up. I am not ready to call it quits yet!
Each day is joyful, and always will be, because of my family, the Earth, and my friends. Still, I want this blog to speak for me, and help people understand the challenges of dealing with ALS.
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