Still me, but different

We watched "You're Not You" last night.  Interesting, funny, sad.  Like life with ALS is for everyone who has it or cares about someone with it.

I don't have a lot to say.  Still working, still talking, still able to write longhand a bit.  Not able to see this continuing for years though.  While I can breathe with no trouble, losing my arms will be a very significant point.  I imagine I will adjust to it as I have to everything else, but it seems like it will be one of the harder things to accept.

Still, I value each day, and getting outside even in the winter is a treat.  Caroline and I walked/rolled to a celebration of life for a wonderful woman on a beautiful warm January Saturday.  She had been in a wheelchair since whe was 17, but always was a bright, smiling inspiration.  She married and raised a beautiful family before being diagnosed with breast cancer and passing at 51.  I can look to her shining example of how to take the life you're given and make it wonderful.

Upon awakening

Each morning when I awake, I have the happy ability to see the sky behind me by accident.  We installed an electric fireplace, which has a very reflective face. So I see the sky and a tree from bed, even though the window is behind me.  Cool!

Better, though, is the gift Dolan gave me for Christmas. He actually commissioned a local artist to create a work with bear grass and me in mind.   This is the result, and I see it from bed also.   Funnily, I saw it immediately by the tree, and thought Paul bought it for Dolan.  I actually said to Dolan that he wasn't very observant about his gifts, and he said, "No, Mom, you aren't observant.  The art is your present from me!"