Wednesday, March 4, 2015

Ponderings

Update on JR14: unanimously passed the full Senate.  Now for the House...

A person with ALS has been compared to a candle melting as the flame burns.  That seems apt, as the light goes out at the end of a life, just as a candle sputters and dies.  I was envisioning myself as a house, brightly lit, with the lights being turned off one by one. One light is walking, another using my hands,  or being able to roll over in bed.  Lights have gone out in many ways, but just as one can still function in a darkened house, I can still do so many things.

Work brings me joy, but getting there presents challenges.  Today I simply do not have the physical or mental energy to pull myself through showering and dressing.  Putting on underwear or socks can take 15 minutes for each, plus the time for the remainder of dressing.  The idea of that is pretty daunting.  I am thankful that I have an understanding supervisor in John.

I have not wanted to let ALS stop me from going to work, because the slope is way too slippery, and if go down it, I most likely will not come back up. I am not ready to call it quits yet!

Each day is joyful, and always will be, because of my family, the Earth, and my friends.  Still, I want this blog to speak for me, and help people understand the challenges of dealing with ALS.

17 comments:

  1. You are amazing and I love you! Thanks for taking time to journal your thoughts, I was sad we missed lunch, but I understand; for me it is not about going places and being waited upon (which is great), but more about the sharing of our lives; so again this blog is great, but getting to see your smiling face, that is the wonderful part of the friendship. Anyways I am rambling, as usual ;) next time I hope you have the strength for a visit.

    ReplyDelete
    Replies
    1. I have been suffering from Amyotrophic lateral sclerosis (ALS) disease for the last two years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Segun and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Segun telling him about my (ALS Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Segun on : (dr.segunsplletemple@gmail.com)..... THESE ARE THE THINGS DR Segun CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!...

      Delete
  2. I continue to be in awe of you and your tremendous strength of mind.

    ReplyDelete
  3. I have been suffering from Amyotrophic lateral sclerosis (ALS) disease for the last two years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Segun and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Segun telling him about my (ALS Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Segun on : (dr.segunsplletemple@gmail.com)..... THESE ARE THE THINGS DR Segun CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!...

    ReplyDelete
  4. I have been suffering from Amyotrophic lateral sclerosis (ALS) disease for the last two years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Segun and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Segun telling him about my (ALS Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Segun on : (dr.segunsplletemple@gmail.com)..... THESE ARE THE THINGS DR Segun CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!...

    ReplyDelete
  5. I have been suffering from (HERPES SIMPLEX VIRUS) disease for the past four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulating all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr MADUKA and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr. MADUKA telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,,well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email madukahealinghome@gmail.com

    ReplyDelete
  6. I have been suffering from (HERPES SIMPLEX VIRUS) disease for the past four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulating all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr MADUKA and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr. MADUKA telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,,well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email madukahealinghome@gmail.com

    ReplyDelete
  7. This is real take it serious, who will believe that there are still trustworthy people online, i have spend a lot when getting drugs from the hospital and also scam from internet, what i was waiting for is death because i was broke, one day i hard about this great woman who is well know of HIV and cancer cure, i decided to email her, unknowingly to me that this will be the end of the herpes in my body, she prepare the herb for me, and give me instruction on how to take it, at the end of the one month, she told me to go to the hospital for a check up, and i went, surprisingly after the test the doctor confirm me negative, i thought it was a joke, i went to other hospital was also negative, then i took my friend who was also suffering from herpes and can conceive, after the treatment she was also confirm herpes free .and now she has 2 kids. please i want every one who need any help to contact this great woman,now and save your money from scam. do email: dralbert107@gmail.com or dralbert107@yahoo.com you can also reach DR through whats app.+2349036492096 she is a great woman. thank you for saving my life, and I promise I will always testify for your good work.


    Regards

    ReplyDelete
  8. This is real take it serious, who will believe that there are still trustworthy people online, i have spend a lot when getting drugs from the hospital and also scam from internet, what i was waiting for is death because i was broke, one day i hard about this great woman who is well know of HIV and cancer cure, i decided to email her, unknowingly to me that this will be the end of the herpes in my body, she prepare the herb for me, and give me instruction on how to take it, at the end of the one month, she told me to go to the hospital for a check up, and i went, surprisingly after the test the doctor confirm me negative, i thought it was a joke, i went to other hospital was also negative, then i took my friend who was also suffering from herpes and can conceive, after the treatment she was also confirm herpes free .and now she has 2 kids. please i want every one who need any help to contact this great woman,now and save your money from scam. do email: dralbert107@gmail.com or dralbert107@yahoo.com you can also reach DR through whats app.+2349036492096 she is a great woman. thank you for saving my life, and I promise I will always testify for your good work.


    Regards

    ReplyDelete
  9. WAOOOO IT WORK FOR ME AND MY FAMILY WE ARE HAPPY AGAIN
    I want to give a testimony on how I got cured from Herpes Virus. Few months back I was having some symptoms . I went to see a doctor and many blood tests was done on me, later on I was told I had Herpes. My doctor told me that there's no cure for Herpes I felt bad, I went online searching for a possible cure for Herpes Virus, I saw a post of Dr. UDURO a herbal doctor that cured someone from Herpes. I contacted him and told him how I'm feeling he said his herbal medicine can cure me. He sent me the medicine via Courier Service and I received the medicine some days after he sent it, i took the medicine as prescribed by him. Before the completion of the medication the symptoms stopped. I went to the doctor and carried out another blood test, surprisingly I was Negative. I haven't had any symptoms anymore, you can contact him via Email drudurohaberahome@gmail.com or whatsapp number +2348138634433 website (http://drudurohaberahome.webs.com/) Not true just contact him and get cure from Dr UDURO healing spell cure of all kinds of sickness Like HIV/AIDS, DIABETIES, CANCER, HIPATITES ABC. He can also bring back your Ex lover back to you.Remember delay in treatment leads to death email him via drudurohaberahome@gmail.com or visit his website (http://drudurohaberahome.webs.com/)

    ReplyDelete
  10. WAOOOO IT WORK FOR ME AND MY FAMILY WE ARE HAPPY AGAIN
    I want to give a testimony on how I got cured from Herpes Virus. Few months back I was having some symptoms . I went to see a doctor and many blood tests was done on me, later on I was told I had Herpes. My doctor told me that there's no cure for Herpes I felt bad, I went online searching for a possible cure for Herpes Virus, I saw a post of Dr. UDURO a herbal doctor that cured someone from Herpes. I contacted him and told him how I'm feeling he said his herbal medicine can cure me. He sent me the medicine via Courier Service and I received the medicine some days after he sent it, i took the medicine as prescribed by him. Before the completion of the medication the symptoms stopped. I went to the doctor and carried out another blood test, surprisingly I was Negative. I haven't had any symptoms anymore, you can contact him via Email drudurohaberahome@gmail.com or whatsapp number +2348138634433 website (http://drudurohaberahome.webs.com/) Not true just contact him and get cure from Dr UDURO healing spell cure of all kinds of sickness Like HIV/AIDS, DIABETIES, CANCER, HIPATITES ABC. He can also bring back your Ex lover back to you.Remember delay in treatment leads to death email him via drudurohaberahome@gmail.com or visit his website (http://drudurohaberahome.webs.com/)

    ReplyDelete
  11. I was diagnose december 20,2012 and find out I'm hiv positive.I was scared because there is no cure for HIV/AIDS but today some people still not believe that there is cure.for HIV/AIDS it can be cured through Africans root and herbs,and
    there our doctor's here in american few knew about the african herbs can cure Hiv they hide it from us just to make a sale of ARV.I did a research online finding way to get rid of my desease,I found a herbal doctor on internet Name Dr Itua I contact him on whatsapp chat with him explain my self to him.He said he can help me cure my desease, he request for items fees which i send to him. within 3days he sent me the herbal medicine through courier service.And told me how to drink the medicine for 2weeks to get cured,I did for two weeks then he ask me to go for medical check up I horried to Kansas Medical Center nearby and I was Negative.The doctor Kalender Rich Jessica ask me what wrong ? how did i get rid of it I told her. imagine doctor Kalender Rich Jessica persuading me not let anyone know about it,I wasn't shock though i knew they know about the herbal cure.Don't be left behind if you are reading this contact Dr Itua on drituaherbalcenter@gmail.com or whapsapp +2348149277967..He Can also cure the following desease..Herpes Virus...Hiv/Aids...Hepati C...Diabetis...Ex Back...Penis Enlargement...

    ReplyDelete
  12. My life is beautiful because of you Mein Helfer.Lord jesus into my life as a candlelight in the dark. You showed me the meaning of faith with your words. I know even when i cried all day thinking how to get well you weren’t sleeping you were dear for me.I contacted Dr Itua herbal center lived in west Africa. A friend of mine here in Hamburg she’s from Africa too,She told me about Africa herbs but was nervous about it.I’m really scared when it come to African because i heard allot of fiend things about them due to my christianity I pray to god for direction,I take the bold step and contact him on email then move to whatsapp he ask if I can come over for the treatment or want a delivery,I said i want to meet him I buy 2ways ticket down to Africa to meet Dr Itua,I went there and i was speechless Of people I saw there.Patent,Sick people.Dr Itua is a god sent to the world,I told my Pastor about what am into,Pastor Bill Scheer We have a wonderfully Real Battle With Spirit And Flesh.worship that same night,He pray for me and ask me to lead,I spent 2weeks and 2days in Africa in Dr Itua Herbal Home,After the treatment He ask me to meet his nurse for hiv test when i did it was negative,I quitely ask my friend to take me to other nearby hospital when i got there it’s was negative.I was overwhelm with the result,But happy inside me.We went to Dr Itua,I thank him but I explain to him I don’t have enough to show my aprecaition he understand my situation but promise him to testify the good work of his.I thank god for my dear friend,Emma I know she might be reading this right now,I want to say thank you.And a big thanks to Dr Itua Herbal Center.He Gave me his calendar which I place on my wall in my house.Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,You can contact him on email or whatsapp,@..drituaherbalcenter@gmail.com,phone number..+2348149277967..He’s nice Doc,Talk to him nicely.I’m sure he will listen to you as well.

    ReplyDelete
  13. My life is beautiful because of you Mein Helfer.Lord jesus into my life as a candlelight in the dark. You showed me the meaning of faith with your words. I know even when i cried all day thinking how to get well you weren’t sleeping you were dear for me.I contacted Dr Itua herbal center lived in west Africa. A friend of mine here in Hamburg she’s from Africa too,She told me about Africa herbs but was nervous about it.I’m really scared when it come to African because i heard allot of fiend things about them due to my christianity I pray to god for direction,I take the bold step and contact him on email then move to whatsapp he ask if I can come over for the treatment or want a delivery,I said i want to meet him I buy 2ways ticket down to Africa to meet Dr Itua,I went there and i was speechless Of people I saw there.Patent,Sick people.Dr Itua is a god sent to the world,I told my Pastor about what am into,Pastor Bill Scheer We have a wonderfully Real Battle With Spirit And Flesh.worship that same night,He pray for me and ask me to lead,I spent 2weeks and 2days in Africa in Dr Itua Herbal Home,After the treatment He ask me to meet his nurse for hiv test when i did it was negative,I quitely ask my friend to take me to other nearby hospital when i got there it’s was negative.I was overwhelm with the result,But happy inside me.We went to Dr Itua,I thank him but I explain to him I don’t have enough to show my aprecaition he understand my situation but promise him to testify the good work of his.I thank god for my dear friend,Emma I know she might be reading this right now,I want to say thank you.And a big thanks to Dr Itua Herbal Center.He Gave me his calendar which I place on my wall in my house.Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,You can contact him on email or whatsapp,@..drituaherbalcenter@gmail.com,phone number..+2348149277967..He’s nice Doc,Talk to him nicely.I’m sure he will listen to you as well.

    ReplyDelete
  14. Medical scientists have discovered a new way to battle HIV AIDS by using a man called Dr itua
    MY NAME IS Greg Thomas.I SAW A COMMENT ON POSITIVE BLOGS AND I WILL LOVE TO TELL EVERY BODY HOW MY STATUS CHANGES TO NEGATIVE and i got cured,
    AND AM NOW A LIVING WITNESS OF IT AND I THINK ITS A SHAME ON ME IF I DON'T SHARE THIS LOVELY STORY WITH OTHER PEOPLE INFECTED WITH THIS DEADLY VIRUS.
    HIV HAS BEEN ONGOING IN MY FAMILY, I LOST BOTH PARENTS TO HIV. AND IT IS SO MUCH PAIN I'VE NOT BEEN ABLE TO GET OVER..
    AS WE ALL KNOW MEDICALLY THERE IS NO SOLUTION TO IT..AND MEDICATION IS VERY EXPENSIVE..SO SOMEONE INTRODUCED ME TO A HERBAL PRACTITIONER IN AFRICA..
    I HAD A JOB THERE TO EXECUTE SO I TOOK TIME TO CHECK OUT ON HIM.I SHOWED HIM ALL MY TESTS AND RESULTS..
    I WAS ALREADY DISORGANIZED WITH HIV AND IT WAS ALREADY TAKING ITS TOWL ON ME..
    I HAD SPENT THOUSANDS OF DOLLARS SO I DECIDED TO TRY HIM OUT ALTHOUGH I DID'NT BELIEVE IN IT,
    I WAS JUST TRYING IT OUT OF FRUSTRATION? AND AFTER 14 DAYS, HE TOLD ME TO GO FOR A MEDICAL TEST.
    AND YOU WON'T BELIEVE THAT 5 DIFFERENT DOCTORS CONFIRMED IT THAT AM NEGATIVE..IT WAS LIKE A DREAM,,I NEVER BELIEVE HIV HAS CURE..AM NOW NEGATIVE,,
    AM A LIVING WITNESS..I DON'T KNOW HOW TO THANK THIS MAN? I JUST WANT TO HELP OTHERS IN ANY WAY I CAN..
    I HAVE JOINED MANY FORUMS AND HAVE POSTED THIS TESTIMONIES AND ALOT OF PEOPLE HAS MAIL AND CALLED THIS MAN ON PHONE AND AFTER 14 DAYS THEY ALL CONFIRMED NEGATIVE..
    BBC NEWS TOOK IT LIVE AND EVERY EVERYBODY SAW IT AND ITS NOW OUT IN PAPERS AND MAGAZINES THAT THERE IS A HERBAL CURE FOR HIV AND ALL WITH THE HELP OF THIS MAN,,
    IF YOU WISH TAKE IT OR NOT..GOD KNOWS I HAVE TRIED MY BEST. ABOUT 28 PEOPLE HAVE BEEN CONFIRMED NEGATIVE THROUGH THE HERBAL CURE OF DR ITUA
    AND THEY SEND MAILS TO THANKS ME AFTER THEY HAVE BEEN CONFIRMED NEGATIVE,,THIS MAN IS REAL..DON'T MISS THIS CHANCE,,HIV IS A DEADLY VIRUS,,GET RID OF IT NOW..
    If there is anyone who has similar problem and still looking for a way out, his email still remains drituaherbalcenter@gmail.com or call or whatsapp him on +2348149277967
    DOCTOR ITUA CAN AS WELL CURE THE FOLLOWING DISEASE:-
    1. HIV/AIDS
    2. HERPES
    3. CANCER
    4. ALS
    5. Hepatitis B
    6. Diabetes

    Thanks Moderators

    ReplyDelete
  15. My life is beautiful because of you Mein Helfer.Lord jesus into my life as a candlelight in the dark. You showed me the meaning of faith with your words. I know even when i cried all day thinking how to get well you weren’t sleeping you were dear for me.I contacted Dr Itua herbal center lived in west Africa. A friend of mine here in Hamburg she’s from Africa too,She told me about Africa herbs but was nervous about it.I’m really scared when it come to African because i heard allot of fiend things about them due to my christianity I pray to god for direction,I take the bold step and contact him on email then move to whatsapp he ask if I can come over for the treatment or want a delivery,I said i want to meet him I buy 2ways ticket down to Africa to meet Dr Itua,I went there and i was speechless Of people I saw there.Patent,Sick people.Dr Itua is a god sent to the world,I told my Pastor about what am into,Pastor Bill Scheer We have a wonderfully Real Battle With Spirit And Flesh.worship that same night,He pray for me and ask me to lead,I spent 2weeks and 2days in Africa in Dr Itua Herbal Home,After the treatment He ask me to meet his nurse for hiv test when i did it was negative,I quitely ask my friend to take me to other nearby hospital when i got there it’s was negative.I was overwhelm with the result,But happy inside me.We went to Dr Itua,I thank him but I explain to him I don’t have enough to show my aprecaition he understand my situation but promise him to testify the good work of his.I thank god for my dear friend,Emma I know she might be reading this right now,I want to say thank you.And a big thanks to Dr Itua Herbal Center.He Gave me his calendar which I place on my wall in my house.Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,You can contact him on email or whatsapp,@..drituaherbalcenter@gmail.com,phone number..+2348149277967..He’s nice Doc,Talk to him nicely.I’m sure he will listen to you as well.

    ReplyDelete
  16. My life is beautiful because of you Mein Helfer.Lord jesus into my life as a candlelight in the dark. You showed me the meaning of faith with your words. I know even when i cried all day thinking how to get well you weren’t sleeping you were dear for me.I contacted Dr Itua herbal center lived in west Africa. A friend of mine here in Hamburg she’s from Africa too,She told me about Africa herbs but was nervous about it.I’m really scared when it come to African because i heard allot of fiend things about them due to my christianity I pray to god for direction,I take the bold step and contact him on email then move to whatsapp he ask if I can come over for the treatment or want a delivery,I said i want to meet him I buy 2ways ticket down to Africa to meet Dr Itua,I went there and i was speechless Of people I saw there.Patent,Sick people.Dr Itua is a god sent to the world,I told my Pastor about what am into,Pastor Bill Scheer We have a wonderfully Real Battle With Spirit And Flesh.worship that same night,He pray for me and ask me to lead,I spent 2weeks and 2days in Africa in Dr Itua Herbal Home,After the treatment He ask me to meet his nurse for hiv test when i did it was negative,I quitely ask my friend to take me to other nearby hospital when i got there it’s was negative.I was overwhelm with the result,But happy inside me.We went to Dr Itua,I thank him but I explain to him I don’t have enough to show my aprecaition he understand my situation but promise him to testify the good work of his.I thank god for my dear friend,Emma I know she might be reading this right now,I want to say thank you.And a big thanks to Dr Itua Herbal Center.He Gave me his calendar which I place on my wall in my house.Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,You can contact him on email or whatsapp,@..drituaherbalcenter@gmail.com,phone number..+2348149277967..He’s nice Doc,Talk to him nicely.I’m sure he will listen to you as well.

    ReplyDelete