Wednesday, January 28, 2015

Still me, but different

We watched "You're Not You" last night.  Interesting, funny, sad.  Like life with ALS is for everyone who has it or cares about someone with it.

I don't have a lot to say.  Still working, still talking, still able to write longhand a bit.  Not able to see this continuing for years though.  While I can breathe with no trouble, losing my arms will be a very significant point.  I imagine I will adjust to it as I have to everything else, but it seems like it will be one of the harder things to accept.

Still, I value each day, and getting outside even in the winter is a treat.  Caroline and I walked/rolled to a celebration of life for a wonderful woman on a beautiful warm January Saturday.  She had been in a wheelchair since whe was 17, but always was a bright, smiling inspiration.  She married and raised a beautiful family before being diagnosed with breast cancer and passing at 51.  I can look to her shining example of how to take the life you're given and make it wonderful.


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