We watched "You're Not You" last night. Interesting, funny, sad. Like life with ALS is for everyone who has it or cares about someone with it.
I don't have a lot to say. Still working, still talking, still able to write longhand a bit. Not able to see this continuing for years though. While I can breathe with no trouble, losing my arms will be a very significant point. I imagine I will adjust to it as I have to everything else, but it seems like it will be one of the harder things to accept.
Still, I value each day, and getting outside even in the winter is a treat. Caroline and I walked/rolled to a celebration of life for a wonderful woman on a beautiful warm January Saturday. She had been in a wheelchair since whe was 17, but always was a bright, smiling inspiration. She married and raised a beautiful family before being diagnosed with breast cancer and passing at 51. I can look to her shining example of how to take the life you're given and make it wonderful.
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